So lucky to have strong role models!

On both sides of my family I’ve had women that were pretty amazing as role models.   Some are still around and others are just in my family history, but had an effect on the formation of who I am.  If you divide my family into my four grandparents, you will find that 75% have descended from ancestors that came to the United States before the Revolution.

That last 25% was my grandmother’s family that came over from Italy in the early 1900’s.  My grandmother was the last of nine children with the first three being born in Italy and coming over with just my great grandmother to follow her husband as he came to the Clinton IN and Belgiumtown IL, joining a cousin and finding work in a coal mine.    My great grandfather came over first leaving his wife to come on a ship with three very young girls over to the US.  At that point the trip involved bringing everything you wanted to keep in a chest and staying in a small area for a long time with a lot of other people, in the bottom part of the ship. Then arriving at Ellis Island, where if you (and the kids) had managed to remain healthy, you were quarantined in dormitories until you were cleared to leave the island.

My family then went on to Clinton Indiana where one of the girls passed away.  Over time they lost two girls out of all their children, one even having the same name as my grandmother.  My great grandfather worked in a coal mine, and the boys went on to join him as they became old enough. My grandmother being the youngest was the only child that managed to go to high school.  My great grandmother thought that she wasn’t as healthy as the others and would end up needing to work in some field that didn’t involve as intensive work… My grandmother at one point said she had wanted to be a nurse.  The kids all pulled money together and grandma made it to high school.  She borrowed books and studied as much as she could, going on to be a school teacher at the point when a college degree wasn’t necessary.

My great grandfather had passed away when my grandmother was only two from the flu of 1918.  He was in the process of applying for citizenship at the time, so the paperwork didn’t get completed. I’m not sure when my aunt’s finished their paperwork, but my great grandmother didn’t apply until shortly before her death in the 60s.  She lived simply in a small house in Belgiumtown Illinois, grew her own food, and cleaned houses for the coal miners in the area.  Most of my aunts and uncles lived nearby – within just a few blocks.

When my mother’s father drowned while my mother was only about 3, my grandmother and mother moved in with my great grandmother.  When my grandparents married my grandmother had to quit teaching since women teachers were not allowed to be married at that time.  (It seems crazy now to think about the restrictions they faced!)  My grandmother went on to do several things to keep my mother and herself fed and clothed until she met her second husband.

Even having never met my great grandmother I can say she was pretty amazing.  Traveling to a new country with three young kids by herself, not knowing the language, then raising the kids including suffering the loss of two of her children – and then the loss of her husband, and keeping everyone fed and clothed is pretty amazing.  Part of the time this occurred was during WWI and WWII when Italians weren’t high on the list of favorite people in the United States.   I remember one day coming home to tell my grandmother a new joke someone had told me that involved Italians.  I had no clue what the term Daigo meant, I’m not even sure the kid that told me the joke knew what it meant.  But my grandmother knew!  My grandmother could swear up a storm, but that was one word I learned not to ever repeat again.  There were others, things kids called them in school, but that one was my first experience with what my grandmother faced growing up.

My grandmother when first married had lived in a little shack, using a drawer for my mother to sleep in.  My grandfather worked a coal mine with his brothers – my grandmother’s brother built the shack if I remember right.  I’ve written about the stories from when my grandmother met her second husband, and remarried.  Like my great grandmother she originally avoided getting remarried.

There are so many things I learned from my grandmother, and so much more I could have learned from her.  All my grandmother’s (and aunts) have served through time as strong role models.

Robert Carl Richter

My father passed away September 23rd, 2017…  the guestbook is available at: Robinson’s Funeral Chapel 

The memorial service was at Muncie Baptist Church and included stories about my dad.  Getting a chance to hear some friends and family tell their stories about my dad’s life was a fitting way for his life to be remembered as far as what I think he would have liked.  He wanted to be cremated and spread around his farm, his farm being something he loved.  Being away from it the last few years I’m sure was as tough on him than the disease that was robbing his memory.

Stories included tales from his childhood of money making plans with his favorite sidekick and cousin, Don, where they collected all the Pigeon’s from the barns in the area – thinking they could sell them as squab – then the cleaning the barn and shooing pigeons for weeks after when their parents found out.

My father’s time in the army amusing everyone but the officer’s tasked with training them.  My father answering questions with darned if I know and earning everyone push ups for laughing…  Throwing in comments, like save some for me, from the back of the chow line during the company picnics.

My cousin Larry told about my dad taking him hunting for his first time, a friend telling about meeting my dad and sending him down to Kentucky. I’m fairly certain I remember the trip he was talking about – my second grade year when we went down and got the dog Waldo from a friend’s dad in Kentucky.  He had a tobacco farm and gave us tobacco leaves to bring back for show and tell.  A friend of mine that made a special effort to come to talk about how much my dad had meant to her, and so much more!

I didn’t tell about my dad, fixing our brakes for our truck and having spare parts…..  He pointed out Ford always includes extra parts….  I mentioned my dad getting the boys animals, we always had lots of animals growing up.  My dad once noticed our deer had escaped (yep deer, we had buffalo too), and chased it through the field with a ramcharger. down to the end and back.  He got out and was trying to wrestle it, when it pinned him with it’s antlers to the propane tank.  Antlers on each side of him!

There are so many more stories, many that I don’t even know, but having a chance to meet up with family and share stories was the best way I could imagine to say goodbye to dad.   I would have loved to speak to everyone and hear all their stories if time would have just been able to slow down for a little while.

 

Robert Richter

June 29, 1940 – September 23, 2017

Oakwood – Robert Carl Richter, 77, of Oakwood, passed into peaceful rest at 7:15 p.m. Saturday, September 23, 2017 at Illini Heritage Rehab & Health in Champaign.

He was born on June 29, 1940 in Vance Twp. the son of Wesley Thomas & Mildred G. Eldridge Richter. He married his wife of 50 years Karen McArdle on February 4, 1967 in Westville, IL. She survives. Other survivors include 1 daughter, Karla (Dr. Keith) Andrew, 1 son, Robert Richter, and 3 grandsons, Kevin, Kristopher, and Konnor. Additionally he is survived by 2 sisters, Ethel Eichorst and Linda Richter; 1 brother, Tom Richter, as well as many nieces and nephews. He is preceded in death by 4 sisters, Dorothy Mitchell, Margaret Brothers Hersh, Cleta Fern Richter, and Norma McVey, and 2 brothers, Frank Richter and Howard Richter.

Bob was loved by everyone he met and never met a stranger, even talking himself out of a speeding ticket on his honeymoon and inviting the officer home to go fishing to boot. He lived, hunted deer and mushrooms, and farmed within miles of the family land which like his family, was always important to him.

My wedding

My Wedding

Halloween? My Grandfather Richter? Little Debbie…

Visiting my mother this weekend, we stopped for dinner at McDs.  The local gathering point for everyone in Oakwood.  While there we noticed two of my cousins having dinner – from my grandfather RIchter’s twin brother Lesley.

Getting a chance to talk to family is always high on my list!  I let them know how dad was doing – not great, he wasn’t even speaking during our visit. I’m pretty sure my dad had no clue who I was.  That’s never easy… I had just listened to a podcast (to get off topic) about how dementia patients can be retaught things at each stage.  Talking to dad and telling him about what is going on around him, what’s happening with everyone from his life and the area should help keep some part of his mind available for a little while.  I try so hard to remember while there that he may not react and may not know me or speak to me, but some part of his mind may have a spark of understanding of who I am and what I am telling him.  Something to keep a little more grey cells alive a little longer in his brain….  Anyway back to cousins.  My cousins were at dinner and we were talking about dad and the topic came up about DNA tests, family history and what our future looks like.

Family History:

We have a lot of family members with a history of stroke.  My dad also has damage from a car accident when he was in his teens, and several farm accidents… My cousin’s (at dinner) mother was the one that held my dad while he was bleeding after the accident.  Their father was the twin to my grandfather…  Strokes are something to keep in mind as we move forward.  I know I don’t have the gene tested for late onset Alzheimer’s, but that’s totally different from Vascular Dementia.

DNA Tests

Now with DNA tests you can be tested for all sorts of things that can be passed down.  Luckily I found that everything that is currently in the companies list is not in my DNA, but as I mentioned to my family… I think if it had been I would then be very careful about who I told that I had been tested.  My assumption is that sooner or later that data will make it out.  Will it count against some people for insurance?  I  was lucky to be negative on everything.  I can see a time though where kids who haven’t even been tested get denied for insurance because their parents were carriers for the — fill in the blank — gene.  If the data is out there you have to assume that sooner or later it will be accessed.  With the  current climate my assumption is that it is even more likely.  Your medical records already contain the answers to the questions – do you have a family history of?  How long until it’s expanded to include do you know anyone that has a gene for? A company now is even offering free DNA testing to expand their database and research….  How long until the group that doesn’t know their full DNA make up is a minority?

Grandpa Richter

While talking the topic of what happened to my grandfather came up.  I was in grade school (2nd grade I think)  It was Oct 30, 1974 and my grandfather had a stroke walking into his house. He was half in and half out.  My parents didn’t let us come see and they took care of everything.  My grandfather had a housekeeper that had been taking care of him as a live in.  As he passed away each of the brothers and sisters had to be tracked down to let them know… of course no cell phones.   My Aunt Linda was teaching and her principle drove her over, my Aunt Dorothy had her phone off the hook and a neighbor had to be asked to run over and let her know, and my Aunt Norma was just leaving for a tractor pull in a semi.  Aunt Norma and Uncle Lloyd owned a trucking company, big purple trucks, and an employee was able to reach them by CB. His passing away had been a complete surprise…

I remember going down and having the Little Debbie Oatmeal pies and the crust off his pot pies.  Those two things still remind me of him.  I don’t remember much about him, except those two things and pictures, but I do remember those things.  He would take the crust off his pot pie and give it to me at a formica table in the kitchen.  The oatmeal pies I remember being in the living room.   I do remember one other thing, but it could be from years later as my aunt Linda was living in the house…. Concord grapes growing on the vine in the front yard. To this day I still love concord grapes!  I can distinguish the taste from all the other grapes, I have no clue any other type of grape.

Halloween

My mom has stories about us going to my cousins (Harold and Olives) for Halloween that year while they planned everything.  I don’t really remember that part, which is probably a good thing since I still enjoy Halloween.  Living in the country it was rare for us to get to go trick or treating except to relatives houses.  A couple years we got to go in to town and go door to door with friends.     My mother tells stories about me answering peoples questions about whether we lived in Oakwood with ‘Nos’ since we lived out of town….  I now am faced with the same feeling I’m sure she felt when I take my youngest in to the parade in Oakwood.  We have a place right outside town, we have been in the area forever, but anyone that asks if we live there and I know my son’s answer will be nope!

My Thoughts for My Kids if I get Dementia in the Future

My Thoughts for My Kids if I get Dementia in the Future

I recently read an article by someone about what she would tell her children if she was diagnosed with Alzheimer’s disease.  We’ve actually lived through a few instances of both Alzheimer’s and dementia now and in the past.   Both are pretty sucky diseases! I got the impression from the article (and I could be wrong) that the person writing it was talking about the disease that you see on television.  The forgetful parent that is living in the past and is still mobile.  For Alzheimer’s disease that was a stage we did see too.  I won’t write much about it other than to say my impression was that the article was written to make caregivers feel guilty for thoughts they may be having. Thoughts that they already are probably having a hard time with.  In reality, no two people with Alzheimer’s or Dementia are the same.  When I say it’s a sucky disease I mean it becomes a disease like being locked inside your body with no way to communicate and no one has any idea if you are aware or not.  Think awake coma…. In this case though there isn’t the television hope of they are going to wake up… the hope really is that they don’t suffer too much.

My Aunt Kate – Alzheimers

My Aunt Kate was my first experience with Alzheimer’s disease.  We didn’t even have a clue what was going on at first.  Growing up I loved spending time with her.  She, my Aunt Lena Mack, and my grandmother had been the youngest girls in the family of nine kids in an immigrant family raised by my great grandmother.  The lost their father in 1918 in the flu.  My Aunt Kate had married a miner when she was young and then lost him early.  She later met my Uncle Ralph who sold insurance and took photos – lots of phots, and developed them himself!

They lived in the coolest house.  If I had been old enough when she sold that house in Danville Illinois, I would have bought it for sure!  It is still there, but has been changed beyond belief.  It’s beside DCFS and is now a hair place painted blue. It had a huge wrap around porch and at least 4 rooms upstairs.  One of the rooms was a suite and my aunt and uncle never used that part of the house – except when we visited.  One room had a huge walk in closet with a vanity also.  I would go up and check out the vanity with the mirror and old style hair brush, ten wander around.  My parents would drop us at my aunt and uncles when they wanted to go out and needed a babysitter…. My aunt always had a quilt set up in the dining room also.  I loved her quilt frame and went on to have my husband create a similar one for me.  My grandmother would piece quilts and my aunt would quilt them.  She could finish the whole quilt in a month and her stitches were amazing.

Later she moved to a condo after selling.  My grandmother sold her own house and moved nearby, and over time they moved in together.  I remember though the first signs being in the apartment where my aunt started repeating the same stories over and over again.  She had stories that we had heard a few times before, but it seemed those stories started coming up more often.  Why she didn’t have any children was a popular one.  At first though it was little things, nothing that we could really say for sure.  Over time though it started to become obvious that memory as becoming a problem.

At this point I had left for college and was just seeing everyone on visits.  On visits it still appeared my aunt was the same person but told the same stories a few too many times.  My family had started to realize though.  My grandmother and Aunt got a house together, alarms had to be put on the doors in case she wandered…. and my grandmother had to be the caregiver.  But then my grandmother got sick…  My grandmother found out she had breast cancer when my oldest was born.  We had to debate live vaccines or dead vaccines at the time because of chemo… and rearrange baptisms so that she would be healthy enough to attend.  The question though was, if the caregiver now needs care?  So my aunt had to go to a facility.

My Aunt Kate at assisted living would call home asking to be picked up.  She would try to escape, following people out. She also though would tell people stories about how she worked there and would run around making people’s beds for them.  We would bring the kids to visit, and everyone loved them.  As time went on her mind retreated and she started recognizing people as the younger version of people from her childhood.  Visiting was good, she may have thought we were someone else, but it was good for her to interact.

Near the end though Alzheimer’s patient’s become violent. They are frustrated at the fact they can’t remember and they start to just fight back against everything and everyone.  My mother dealt with that.  Patients start losing their ability to do basic things.  The toughest part is that their body in many parts is healthy, it’s only their mind that is suffering.

My Dad – Vascular Dementia

My dad on the other hand is suffering from vascular dementia.  My father had been suffering from untreated high blood pressure for quite a while without realizing it.  It apparently put little holes in parts of his brain.  Additionally he had a motor cycle accident in his late teens that causes brain damage.  The brain damage from the accident was so bad he wasn’t expected to live, but he had made it – and he recovered with just head aches.  Now though the accident makes brain scans difficult.

One morning my father had a stroke, that was really the beginning of the end.  The doctor found the high blood pressure and started treating it.  My father’s family though has a history of strokes and my dad’s strokes didn’t stop them.  My father has had trouble with clotting and each stroke the doctors wouldn’t realize what was going on until later.  I remember a call where my mother called me and said that my father couldn’t move his hand anymore, had slurred his speech but the doctor over the phone said it couldn’t be a stroke and not to bring him in…. I don’t even have a medical degree and suspected stroke….   Two days later they decided it maybe was a stroke and put him in the hospital.

After a couple years of this, a doctor decided my father needed a heart valve replacement.  My father was having issues with memory, slowly slipping.  My mother was still able to leave him for short periods of time (though he once threw away their smoke detector when cooking in the microwave).  My dad was doing a few odd things like he pushed a grain wagon in the pond by mistake, but he was puttering around the farm…  still going out and interacting sometimes.  I have a video of him sword fighting with fake swords with my youngest.  We debated the surgery though…..  without it according to the doctors, my father wouldn’t have much time left.  Ultimately we left it up to my dad, who originally was saying no, but in the end said yes.

Ultimately the surgery was the final straw.  Unknown to us at the time, surgery like this can cause a drastic decline in some older patients like this…. and my dad was one of those odds.  He went through a personality change that was a little tough to deal with, his memory quickly decreased, and physically he never fully recovered. As he declined quickly he needed a walker, but couldn’t remember to use it.  Not using a walker when you need it, leads to falls.  So we were dealing with health issues, behavior changes, and other new issues and my dad wasn’t a small man.

Moving into memory care, because of the behavior changes, caused my dad to have issues with caregivers in the facilities.  Men are much more rare in nursing homes.  My father was sent to locked wards at first to adjust his meds for behavior, then the first facility took him and just dropped him at an ER and said they wouldn’t take him back.  We were new to all this, dealing with documenting everything, but lost really.  Luckily we found a facility in the Amish community (a couple hours away) that was willing to take my father.  Due to the first facility my father had been blacklisted everywhere close.  After a while my father was able to be moved closer and is now a lot closer… but now he’s no longer in a memory care unit.

Vascular Dementia really can mean that the memory only declines each time there is new brain damage, usually in our case from a stroke.  My father’s body itself has failed him completely.  He can’t walk, doesn’t use one hand, and is pretty much locked away.  My father was always active. My dad was a farmer…  He doesn’t normally speak unless you ask him a question, and then sometimes he just stares at you.  We will continue to visit, but to me it looks like he’s being tortured.  Kind of like the people on television given paralytic drugs and set in front of a tv to watch glimpses of their families lives with no hope of ever escaping.

What I want my Kids to Know

For me I want my kids (and how we decide things) to make decisions that they can live with.   There is enough guilt no matter what you decide when dealing with these things.  Don’t ever let anyone else make you feel guilty over any choice you make. Never second guess a decision you have made, you can’t back and change something you decided in the past – so just move forward and make future plans.  I can say don’t feel guilty over anything you decide or do, but no matter what – if you have anything to do with the decision, you are going to feel some guilt over some parts of what happen.

When Alzheimer’s and Dementia patients reach the point where they no longer remember family and start becoming violent, or the point where they can longer answer questions and just stare, it’s hard to not feel like they are being tortured…. actually some even earlier will tell you that they are being held against their will.  They will call at night and ask to be picked up, taken home.

NOTE:

I don’t include normally much about what my dad and mom are going through now.  If anyone is going through Vascular Dementia and wants to talk privately though they are always welcome to contact me.

 

 

1/2 an Inch?

The house I grew up in (we moved in while I was in 2nd grade) was a house that had been built in the early 1800s and was known as the Illk house.  It was the neighborhood that my family had always been in and had I’m sure been built by a person (Abraham Illk) that in some convoluted way related to us.  The bricks for the house were made in the wood near the house and my father would say this house has stood for 100 years and will stand for 100 more!  When the wind would blow for a huge storm, we couldn’t hear anything from inside the house.

One of the stories I remember from my childhood was our washer and dryer needing replaced….. my father had let my brother and I take apart the old ones and play with all the parts, including using the casing to store some animal we had found in the woods.  My father was in the field when the new washer and dryer were delivered…..  Of course the new washer and dryer were a littler larger than the opening to turn the corner and go down the stairs.  The delivery man, not having a clue what my family is like, said the famous words – If we only had another 1/2 an inch!  So my mother after saying are you sure?  Grabbed a hammer and knocked the plaster off the wall.

The delivery quickly put the washer and dryer into the basement and ran as fast as they could out of the house – probably expecting my dad to show up and hurt them in some way.  My brother currently living in the house still hasn’t fixed the plaster, 40 years later!  The lathe on the stairs is still visible, and it’s just the spot directly inside the door.  The basement is unfinished with parts being dirt basically open to the outside, and in one spot there is an opening that has stairs that lead up under the kitchen going directly to the floor and into the dirt.  I remember cats having kittens under the kitchen and having to crawl under the kitchen to see them.

Illlk houseThe picture from the Oakwood Centennial book shows the Illk house before we moved in.  Now the porch doesn’t have the roof and a kitchen and garage have been added on the other side of the living room windows.  We actually got the house from Ralph Goodrich when as I entered second grade.